End of Life Care (Quality of Death & Dying)

END OF LIFE CARE (QUALITY OF DEATH AND DYING) PROJECT

Strengthening health systems to improve end of life experiences, quality of death and dying for patients with advanced disease.

Life Care Patient
Life Care Patient

The quality of the dying and death experience is an important outcome of care to ensure high quality of care near the end of life for people with serious, life-limiting diseases. It is important to improve end-of-life experiences for patients living with advanced disease and their families by promoting patient and family led person-centered models of care to improve the quality of death and dying. Positive experiences are associated with good deaths and in the African context key considerations include freedom from pain, other symptoms and their associated distress, relief from avoidable health related suffering for patients and their loved ones and fulfillment of patient and family end of life wishes. These are consistent with clinical, cultural, and ethical standards of palliative care in Africa.

Enhance quality results for grief and bereavement care at Kitovu Mobile hospice in Buddu region.

All patients on palliative care and they are in their end of life due to advanced chronic illnesses.

  • To strengthen the health system to improve knowledge and skills of health workers in handling and managing patients with terminal illnesses.
  • To provide a holistic palliative care to people living with advanced diseases through administering the four domains of CALM Therapy which include; Symptom management and communication, Change in-self and relationship with close others, Spirituality and sense of meaning, Future hope and mortality.
  • To involve caregivers in informed-decision making and appropriate care for their patients.
  • To ensure quality end of life experience for both patients and their families to relieve death-related burdens and distresses through granting patient and family wishes before the loss.
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  • Train Facility Health Workers and Community Advisory Members
  • Provide CALM (Managing Cancer and Living Meaningfully) therapy to patients living with Advanced disease and their families.
  • Continuous trainings, mentorships and coaching on CALM therapy service.
  • Data management (collection using standard tools, Online data entry, retrieval and analysis).
  • Quality improvement plans to enhance the general palliative care services at Kitovu Mobile Medical Centre.